We made a list of questions about aging and housing for people with disabilities. We called this list the FINDS survey.
We asked many people to take the survey using a computer.
About 5,000 people completed the survey.
People from all 50 states completed the survey.
Most of the people were family caregivers.
7 out of 10 families can’t find the help they need.
4 out of 10 people with disabilities do not get all the help they need.
3 out of 10 people with disabilities are waiting to get help from the state or county. Some people can wait for over 5 years.
8 out of 10 families can’t afford to pay for the help they need.
6 out of 10 caregivers spend at least 40 hours a week helping a family member with a disability. This is like having a second job!
1 out of 5 caregivers had to quit their job to help a family member with a disability
Do people with disabilities have the help they need?
The good news is:
- People can get help to live in the community.
- Families can get help too.
The bad news is:
- Support services are hard to find.
- There are not enough for all the people who need them.
- There are not enough for all the families who need them.
We need to do better!
All people need the right support to live a good life in the community.
Show this to people in your life:
- Show your family caregiver
- Show your case manager
- Show your DSP
Show this to people who can make life better for lots of people with disabilities
- Show government leaders
- Show self-advocacy groups
- Show service providers
Use this information to make your life better
Who did this knowledge translation?
This knowldege translation was created by the Research and Training Center on Community Living at the Institute on Community Integration, University of Minnesota.
Who did this research?
The Arc of the United States and the Research and Training Center on Community Living at the Institute on Community Integration, University of Minnesota
Who wrote the report?
Lynda Anderson, Sheryl A. Larson, and Allise Wuoria. Collaborators were Peter Berns, Ann Cameron Caldwell, and K. Charlie Lakin
What is the title of the report?
2010 FINDS National Survey Technical Report Part 1: Family Caregiver Survey
Where can I find the full report?
You can find the report at these websites:
This is the full report by the University of Minnesota:
This is a summary of the report by the Arc of the United States:
Anderson, L.L., Larson, S.A., & Wuorio, A. (2011). 2010 FINDS National Survey Technical Report Part 1: Family Caregiver Survey. Minneapolis: University of Minnesota, Research and Training Center on Community Living.